Lay summary
Acute rheumatic fever (ARF) and rheumatic heart disease (RHD) inequitably affect Māori and Pacific people in Aotearoa. Most research has focused on ARF; less is known about RHD, the sequela of ARF. This study aims to understand more about the complex pathways to severe RHD and to develop, implement, and evaluate a model of primary health care for Māori with RHD in Aotearoa. The study will apply a mixed method kaupapa Māori methodology, undertaking patient journey mapping and qualitative whānau interviews with Māori with RHD and interviews with health providers working in RHD contexts. Clinical outcomes, including healthcare utilisation and RHD management, along with qualitative whānau and health provider interviews will be used to evaluate the model of healthcare. The study will inform improvements in access, experience and outcomes for whānau Māori with RHD, addressing compounding inequities and improving outcomes.