Lay summary
Issues that affect Maori health need to be explored from a Maori worldview if they are to be effectively addressed. A rising area of importance to Maori health, and indigenous health worldwide, is the field of tissue, gene, and individual data collection. A particular challenge for indigenous people is the tension between individual and collective consent through this process. Genes, more so than other health data, do not just provide information about an individual, but about one’s relatives. Thus, Western concepts of individual ownership and rights are insufficient. The proposed project will explore these issues from a kaupapa Maori perspective, with a particular focus on gathering the voices of rangatahi Maori, given the impact this will have on the health of future generations.