Lay summary
Māori want to die at home cared for by whānau, but they lack critical knowledge about end-stage care (HRC 17/309). End-stage palliative support and resources are lacking, placing additional stress on whānau. Our study will identify practical information and resources needed for end-stage care (full personal and medical cares). To address the knowledge gap in Indigenous end-stage, home-based care, we will use qualitative research methods to scope the foundational work needed to conduct a larger future study. We will consult with our Tupu Tika Māori Advisory Group, Māori health and palliative care professionals, and Māori community members on knowledge gaps and solutions. Two focus groups with 20 whānau caregivers will identify gaps in knowledge and establish practical information needed. We will collate palliative care resources to identify existing support, preferred future resources, and culturally appropriate dissemination methods. The findings will be presented at two conferences and in one written publication.