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Rāpua te Mārama: Bereaved Māori whānau experiences of palliative care and death

Year:
2020
Duration:
24 months
Approved budget:
$999,999.05
Researchers:
Dr Tess Moeke-Maxwell
,
Professor Linda Waimarie Nikora
,
Professor Merryn Gott
,
Associate Professor Janine Wiles
,
Dr Lisa Williams
,
Dr Jackie Robinson
,
Dr Tatiana Tavares
Health issue:
Ageing
Proposal type:
Project
Lay summary
This qualitative kaupapa Māori study uses a public health lens to investigate the end-of-life experiences of 26 Māori whānau who had someone in their ‘bubble’ die during COVID-19 lockdown. We will explore whānau experiences of end-of-life care, gaps in palliative care, interpretation and enactment of COVID-19 health and tangihanga policies across seven sites, and the creative ways they used or adapted their customs. Up to 34 health professionals and funeral directors will provide insights into the challenges and creative solutions they adopted to support whānau. A creative-arts dissemination approach will be employed to collaborate with bereaved whānau to create a visual representation of their COVID-19 resilience. These visual-textual stories will be shared at interactive public exhibitions to promote community discussion and increase understanding. The findings will be disseminated on Pā Te Aroha (a Māori end-of-life website), publications and hui to support Māori resilience during pandemics.