Lay summary
In New Zealand (NZ) the average age of diagnosis of cerebral palsy (CP) is 19 months. In contrast, international best evidence guidelines show that CP can be accurately detected by three months- providing clarity and allowing for early support for whānau, as well as allowing for targeted, early intervention during the peak time of neuroplasticity leading to a lifetime of improved outcomes. A new whānau centred model of care is required to address timely diagnosis, health, social and representation inequities for children with CP, and maximise long-term function and participation. In preparation for a feasibility study of a pilot multi-disciplinary early diagnosis Hub, based on the Māori concept of te whare tapa whā, we will be undertaking the following activation activities; i) Identification, engagement and establishing a relationship for collaboration with key stakeholders; ii) Planning and development of the different Hub components; and iii) staff education and training.