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Māori whānau experiences of neuropsychological assessment for FASD

Year:
2021
Duration:
39 months
Approved budget:
$260,000.00
Researchers:
Ms Sarah Goldsbury
,
Associate Professor Raewyn Mutch
,
Professor Suzanne Pitama
Health issue:
Child and youth (healthy) development
Proposal type:
Clinical Research Training Fellowship
Lay summary
I am a clinical neuropsychologist of Ngāti Porou and Te-Aitanga-a-Hauiti whakapapa. I undertake the neuropsychological component of fetal alcohol spectrum disorder (FASD) assessments. I work alongside children and youth in temporary and permanent care, and through Youth Court referrals. I am one of few Māori clinicians in this field of clinical practice and research. To date, this is an emerging field of research in Aotearoa, and the impacts of institutional racism within this process and protocol have not been identified. The purpose of this research is to explore and document Māori whānau experiences of the neuropsychological processes in FASD assessment. I will use a Kaupapa Māori methodological approach for this qualitative study, using semi-structured interviews and inductive thematic analysis. The findings of this study will use participant voices as experts to formulate how neuropsychological assessment for a diagnosis of FASD can be more responsive and acceptable to Māori whānau.