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A Hui to establish strategic research priorities for FASD in Aotearoa

9 months
Approved budget:
Dr Joanna Ting Wai Chu
Miss Janell Dymus
Dr Andre McLachlan
Dr Jessica McCormack
Dr Samantha Marsh
Associate Professor David Newcombe
Health issue:
Child and youth (healthy) development
Proposal type:
Research Activation Grant 2
Lay summary
Fetal alcohol spectrum disorder (FASD), a lifelong disability that can affect physical and cognitive development, is under-researched in Aotearoa New Zealand (NZ), resulting in a health system which is ill-equipped to meet the needs of whānau impacted by FASD. There is a pressing need to develop evidence-based interventions, policies and practices that address their needs and those of their whānau for support. We propose convening multi-stakeholder hui to identify strategic research priorities for FASD in NZ. Recognising that there are multiple entry points for addressing the complexities of FASD, and drawing on our collective strengths in research and Kaupapa Māori advocacy and service delivery, NIHI and Hāpai will bring together a wide range of stakeholders - whānau, advocates, health and education services, justice and research - to lay out the roadmap for the next 5-10 years for a coherent, multidisciplinary and Kaupapa Māori driven research agenda.