Lay summary
Childhood cancer remains a leading cause of childhood death globally; however, the number of children surviving treatment now exceeds 80 percent. Our previous research has identified two distinct groups of caregivers: those seeking nutrition information during treatment to optimise their child’s quality of life and in survivorship, where there is a feeling of abandonment despite a survivor’s increased risk of treatment-related chronic disease, often attenuated by diet and lifestyle. Increased access to the internet has prompted a surge in online communities where caregivers seek and share health, nutrition, and lifestyle advice across chronic diseases, including cancer. Understanding the dynamics of these digital forums is crucial for improving evidence-based support systems and supportive care communication strategies. This study aims to ethnographically explore online conversations on nutrition, lifestyle, activity, and complementary and alternative medicine among caregivers in these digital spaces, identifying themes, concerns, and information dissemination patterns.