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Establishing end-user driven autism research priorities in New Zealand

12 months
Approved budget:
Dr Lisa Marie Emerson
Professor Laurie McLay
Dr Larah van der Meer
Ruth Monk
Health issue:
Proposal type:
Health Delivery Research Activation Grant
Lay summary
An increased demand for services that support the health and wellbeing of individuals on the autism spectrum necessitates investment in health delivery research. The proposed activation activities will i) develop relationships and ii) set priorities for health delivery research, driven by the needs of the autism community. We will establish a national partnership advisory group (PAG) of end-users, clinicians, and researchers, who will steer the project, determine appropriate methods and disseminate the findings. We will consult with the autism community via a series of virtual focus groups and an online survey to ask about autism research priorities. The PAG will bring together the findings to produce the first end-user driven autism research priorities for Aotearoa New Zealand which will direct future health delivery research. The partnership established through the activities will springboard a participatory research model for future projects.