Lay summary
Mandatory registration of egg, sperm or embryo donors was required in Aotearoa New Zealand from 2004, thus enabling donor-conceived people to access donor information when they reach the age of 18. However, even though legislation supports the rights of individuals to have access to their genetic knowledge/whakapapa, there is no legal obligation on parents to disclose to their children the nature of their conception. Inadvertent disclosure, e.g., through DNA testing, can occur, with significant implications for donor-conceived people (DCP) and their families. To date, there has been limited research as to the impact of the legislation and if this has influenced parental behaviour, and subsequent donor-offspring and family wellbeing. There is an urgent need for this evaluation particularly as DCP born after the register was established in 2005 will turn 18 in 2023. We plan to host a hui of all interested parties in late 2022 to plan an evaluation.