Lay summary
More than 2,400 Kiwis are diagnosed with a brain tumour annually in Aotearoa. Brain tumours are a complex group of diseases often associated with significant symptoms and poor survival. To improve outcomes for people with brain tumours, it is important that we first have a solid understanding of brain tumours in our country. However, our current data on brain tumours in New Zealand is incomplete, disjointed, and lacking in detail, hindering advancements in research and improvements in patient outcomes. As such, this project aims to establish our national brain tumour registry that will collect, store, and report data from brain tumour patients to healthcare providers, scientists, and the community. These data will be instrumental in improving research efforts, guiding health policies, and attracting prominent international clinical trials to Aotearoa, New Zealand, ultimately providing better health outcomes for the patients and their whānau.