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Quality of care and outcomes in children with cleft lip and/or palate

58 months
Approved budget:
Associate Professor John Thompson
Health issue:
Human genetics and inherited/congenital conditions
Proposal type:
Lay summary
This study has two main objectives in relation to cleft lip and palate (CLP). Firstly, it will investigate the health care delivery pathways from the time of diagnosis to the primary surgery for children with a cleft lip and/or palate and their families. This will ensure that CLP patients are receiving health delivery to the standard expected and required. Secondly, it will provide the first consistently collected outcome data in relation to cleft lip and palate in New Zealand, including surgical outcomes, speech, dental care and, importantly, quality of life. This data will be compared to a parallel study in Australia, as well as to data from the United Kingdom to determine how cleft lip and palate patients in New Zealand fare compared to their contemporaries worldwide. This will allow any deficiencies to be identified and processes put in place to ensure improved outcomes in the future.