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Building BRIDGES for culturally ethical biobanking & genomic research

Year:
2012
Duration:
58 months
Approved budget:
$1,141,547.30
Researchers:
Associate Professor Maui Hudson
Health issue:
Other (generic health or health services)
Proposal type:
Project
Lay summary
Genomic research will not provide the answer to improving all Maori health outcomes, however it will contribute significantly in the future. Maori continue to consent to their tissue being used in health research and this project will explore the ethical issues in relation to biobanking and genomic research, and identify mechanisms to address these issues and protect communal interests. This project will use qualitative methods within a kaupapa Maori framework to answer the research questions: 1. What are the Maori views on biobanking and genomic research? 2. What mechanisms are necessary to address Maori issues and protect Maori interests in these areas? This project will enhance our understanding of Maori ethics in relation to biobanking and genomics and position Maori to lead the development of mechanisms for enhancing consent processes and producing guidelines that support culturally appropriate conduct, analysis, dissemination and knowledge translation in the context of genomic research.